Hello,

wow, I can't believe this site exists! what an awesome concept! So my quick story is that I have had crohn's for 3 years now and i've been on just about every single medication that exists. I was just on remicade and it didn't work so now i'm about to try Humira. I read a little bit about the side effects. I think the aches and pains I can deal with. Has anyone experienced some side effects from initially using Humira, anything i should anticipate?

Hello Aaron 384,

I just started using Humira, and yes the aches and pains are fairly common, nothing to worry about right away. Mine went away after the first month or so. My doctor said that if they continue past the first month or so than you might have to switch meds again. Hope this helps.

I didn't notice any aches or pains although a few months in my hair started falling out like crazy. Clogged up the shower every morning, was all over everything in my house... Luckily I didn't end up with any bald spots and after about a month of this it stopped. I know hair loss isn't listed under the side effects but I've talked to a few other Humira users who've experienced this sort of thing as well.

I have been diagnoised with and with out Crohn;s - at different times. Is there a specific test you can take to determine for sure if you have crohns? My last colonoscopy found a palap that is cancerous. The doctor wants to wait a year and see what it does? Any advise?
Thanks

Jeannie, one thing I've learned is that there is no real way to diagnose Crohns. It's really a process of elimination, but in some cases (like mine) they can rule out everything else with almost complete certainty. It seems weird to leave a cancerous thing in there for a whole year but I'm not really familiar with polyps. Maybe someone else can give you a little bit better advice. I wish you luck,
Chris

thanks for the advice...really appreciated! I will keep you updated

omg, my cosultant is trying to convince me to go on humira, ive hd crohns for 3 years, ive just turned 19 and i hate taking tablets, i feel like im gonna choke and die.. lol.
Ive been on and off steroids for 3 years, ive been on pentasa, asacol, azathioprine and ow im on methatrixate, 15mg nce a week and double dose infliximab every 5 weeks. This medication is keeping my arthritus, crohns and granulamatosis at bay for about 8-9 days then m arthritus and crohns flare up, they seem to think im intolerate to infliximab now so want to try humira but to b honest i dnt know if its worth it?? every time i change medication i get really bad side effects but i take it until the side effects stop happening.

any advice on wether i shold change medication AGAIN??? its like im only 19 and i feel like a cripple btween my arthritus, crohns disease, granulamatosis and epelepsy.. the sayng is lifes a b****

WOW! I have been diagnosed with crohns disease now for 14years and i have taken lots of meds too, I am recently on a study drug and i am on steroids off and on. More on than off, I hate it. But my doctor has never said anything about Humira. I am very interested in hearing more about this so I can talk to my doctor. I'm not sure I can try it right now being on this study drug. I'm always sick alot. I've had 2 colon resections and 16 1/2 inches of small intestines taken out. and a drainage tube for the abcesses. I just want to wish you the best of luck. Hope everything goes well for you.

I have been diagnosed with Crohn's for about 5 years now but I KNOW I have had it for close to 20 years. I have been on everything under the sun and HATE prednisone. I think the makers of that drug should be tortured!
I am on Remicade and it works. The problem, besides I work all the time and don't have a day to waste every 6-8 weeks, is that it is expensive. Even with insurance, it is costly. I was a school teacher with awesome coverage but, due to illness and realizing teaching Severely Disabled kids who would beat you up is not what I wanted to do when I grew up, I have changed professions. I am now am editor for several small town papers. The company that I work for is small with less coverage and a HUGE deductible.
I researched Humira and due to cost and time savings am starting when this Remicade cycle is over. My doc says the side effects and risks are the same as Remicade which I get a headache for a bit. The premeds make me so tired with Remicade that i sleep all afternoon after taking it and am "foggy" the whole next day.
Anyone who had Remicade work switch to Humira? What's the difference to you?